Govt finally announces Soliris fully subsidised from 1 January 2011

The PBAC has recommended funding Soliris through the Life Saving Drugs Progam

Health Minister Nicola Roxon told 4BC's Michael Smith she will fund Soliris upon a PBAC recommendation

Central Coast musician Northie tells his PNH story to support efforts to gain access to treatment for all patients

Tony Abbott confirmed his Government would fund Soliris if elected

Prime Minister Julia Gillard answered PNH patient Jenny Sturrock's plea to fund treatment to save her life

Jenny, a PNH patient diagnosed in January 2010 is visited by Family First Leader Senator Steve Fielding

History and current action of fight for access to Soliris for Australian PNH patients

Please support our petition to the Federal Government to fund the only effective treatment for PNH (Eculizumab). This is the onl...

The PBAC has recommended that Soliris be considered by the Government for inclusion on the LSDP, but it also noted a number of u...

he government's decision not to fund treatment for a life-threatening condition - Paroxysmal Nocturnal Haemoglobinuria (PNH)

Please contact us via the contact form on the home page to join our e-petition in support of treatment for gravely ill patients

Funding for life saving treatment Eculizumab was not included in the Federal Government's Budget, a devastating blow for PNH pat...

Our inaugural celebration of Global Rare Disease Day on February 28